You ARE your disease after all. Bummer.

  We have a lot on our plates with Parkinson’s – accepting, letting go, embracing, exercising, resting, eating healthy, sleeping well, and goodness knows what else. Meanwhile, Parkinson’s continues to threaten your brain on all fronts, while your leg shuffles and your hand trembles. You’re acutely aware that you won’t be sprinting through life like […]

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It Takes Two

When something major happens, you tend to want to share it with someone. You’re feeling shocked or happy or sad, and that can be too much for one heart. Nine years ago, my grandmother died. We told the children. Our son of almost 7 was so startled that he started to tremble. A little later, […]

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You (don’t) know what you’re missing

My right hand used to be so strong! I could do anything I wanted with it and consider that perfectly normal. These days, whenever I see my right hand, I know: you used to be so strong. You’re doing your best, but you’re definitely not what you used to be. And my heart breaks a […]

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Tell me about your Life

Tell me about when you were little; the hands with which you played in the sand, the food you shunned, the small heartaches and the huge plans. Tell me about a time when you were so sure that you’d grow up big and strong, and what you would and wouldn’t do. Tell me about the […]

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The Hello Parkinson’s Hamper

  When you had a baby, you could order a ‘hello-baby-hamper’. Don’t get me wrong – 20 years ago this was perfectly normal (I recently discovered that they still exist, by the way). And that ‘hamper’. It was always a cardboard box crammed with all kinds of useful, cute, practical, sweet baby things. For the […]

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Interview Vrouw.nl (De Telegraaf) (English)

  Vrouw.nl, De Telegraaf Interview 32,000 people in the Netherlands have Parkinson’s – a progressive disease that causes certain nerve cells to die, resulting in loss of muscle control. The repercussions: tremor, stiffness and slowness. The disease is often associated with ‘old people’, which is hardly surprising when: only 1 out 10 Parkinson’s patients are […]

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If only I were a footballer

If Ajax loses, the players can cry openly on the pitch. They can admit that they didn’t play well, and then slouch off home where they can snivel their way through the replays. They quickly pull themselves together and get back to training If you’ve got Parkinson’s, you can’t cry too long or admit your […]

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10 things you shoud never google when you have parkinson’s

10 things you should never google if you’ve got Parkinson’s …never in a million years. How high is your risk of invalidity What happens to those dopa-producing cells that are dying off Is it hereditary Eyesight Impulsive behaviour Dementia and how you (don’t) recognise it How many people with Parkinson’s can still work 10 years […]

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Up close

From a distance, we all look more or less the same. Chinese people live in China, green trees grow in green woods, and grass is just grass. A desert comprises simply sand, and that’s pretty much just how it is. People with Parkinson’s have Parkinson’s, and there are millions of them.

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