I just love working with People with Colds

I love working with People with Colds. Yep, I’ve fully immersed myself in the subject. Well, in all that snot. I’ve since discovered that they’re not the SUM of all that snot. Rather, they just happen to have lots of it. So, I’ve immersed myself in all that snot. And I’ve also discovered that there […]

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Rock Steady Boxing. 100% Parkinson’s.

‘If you want to be able to walk reasonably well 20 years from now, then you’d better start exercising’, said the neurologist more than 6 years ago, when we’d just received my Parkinson’s diagnosis. If you’ve got Parkinson’s, exercise is of vital importance. Next to medicine, exercise is the key way of limiting the disease’s […]

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I need new tools

You’re so used to be able to do everything and anything. Got tools for just about everything. Especially those automated jobs, like walking or smiling. Or shrugging your shoulders. Or getting up fast to go and do something even faster. Or answer a question really quickly. Tap your fingers just for fun or out of […]

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Parkinson’s – the least of my problems

  Your life consists of good and not good. Regardless of whether that’s self-induced or caused by someone or something else. Sometimes it can hover between the two, sort of semi-good. But mostly it’s simply good or not good. From ‘everything is good’ to ‘everything is most certainly not good’ If you’re diagnosed with Parkinson’s […]

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Things that you do/don’t/never have to get used to

 Oh, I could get used to that! That glorious sunshine, that peace and tranquillity, that plush bed, that fancy house. You’d better get used to it. There’s nothing else for it. Hm, this might take a bit of getting used to. This getting up at 6 am business. Ugh!  Well, you’ll just have to get […]

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#theyhavedifficultydualtasking #Parkinsons #therapist

 “So, you have to get them to do exercises, where they have to perform two or more tasks simultaneously. This trains their brains, because this type of thing isn’t easy for these people, you know. It’s nothing to worry about, but you do have to know how to deal with them. You’ll also start to […]

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Planet Patient vs Planet Researcher – from both sides now (by Frank Church)

This thoughtful blog was written by Frank Church, as a follow-up on Simon Stott’s ‘rebuttal’ of my blog ‘Planet Patient vs Planet Researcher’ About Frank Church: Medical school and undergraduate biology educator, biomedical science researcher and part-time golfer. My diagnosis of Parkinson’s Disease, combined with my career in science and education, allows me the ultimate “teachable […]

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I don’t believe in Parkinson’s

Obviously I know I’ve got Parkinson’s. But I don’t believe in it. You tend to believe in things that you don’t have or cannot grasp. Things that are intangible. You need faith, in other words, to keep believing. I believe in the child that we lost – I can never hold her again, but I […]

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Planet Researcher to Planet Patient (by Simon Stott)

Simon Stott is a researcher who makes the unusual effort of explaining the science and research that is currently being conducted on Parkinson’s disease in plain English. He made an even more unusual effort by writing an answer to my blog “Planet Patient vs Planet Researcher.” From his site The Science of Parkinson’s About Simon Stott […]

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Planet Patient vs Planet Researcher

If you’ve got Parkinson’s, you tend to think that all those researchers should just get a blooming move on and find a cure. Or an effective therapy at the very least. I trust you researchers think the same. Yet, patients are on a totally different planet to researchers. From a distance, you could be forgiven […]

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