Ah I know some with Parkinson's....

Kingdom of Parkinson’s. 8. The plumber, the neurologist and the WPC.

Kingdom of Parkinson's. Part 8 The law book flutters around me. I leave her be. Mind you, I have read a page or two. And I have listened to her. That’s the good thing about a law book with a voice. If I forget something, or want to forget something, she’ll whisper softly in my ear. She sits herself down on my shoulder, tickling me with her wings until I’m finally all ears. I’m getting to know her better every day. And, the better I know her, the less I have to carry her. The more of her clever ideas I embrace with my mind as well as my heart, the lighter she flutters around me. Her little leaps are becoming increasingly bigger and sometimes, very occasionally, I lose sight of her. I treasure those fleeting moments of freedom, without rules and laws. Yet, deep down I’m always relieved, happy…

Kingdom of Parkinson’s. 7. The law book

Have you ever seen one of those mini-libraries in your neighborhood? They resemble a bird feeder pole, but with a little door. Reader feeder poles 🙂. This one contains a fresh, attractive, cheerful, alluring and particularly upbeat book with large bold letters. Almost a bit too fancy for what it's about: ‘How to make the most of your life after that hopeless diagnosis’. Between you and me: you shouldn't forget to make the most of your life as it was before your hopeless diagnosis either. You spent many, many years diagnosis-free. And those years brought you a lot: a family, friends, love, loss, sadness and joy. I'm guessing that this book on how to deal with the future overlooks the gifts that life has bestowed on you. Which is silly, because you now need those gifts more than ever. Right. Back to the book with those big cheerful letters and…

Kingdom of Parkinson’s. Part 6. Who else is here?

I am beginning to see beyond the noses of my sneakers. I force myself to look at what lies in front of me, whether I like it or not. At first I don’t see anything or anyone. All I'm aware of is my own sorry self. Because let’s face it, I must be the only one here and certainly the youngest. Wake-up call “Do you realise that you are only one of 7 million with this hopeless diagnosis? So you're not the only one and what’s more, not the only one who feels sorry for themselves. And take it from me, some people have far more reason to feel sorry for themselves than you.” Ooh have they now!!?? "Yes. Sorry to break it to you, you are not the most unfortunate of all and you are not alone. Come on. It's time to get up from your pity-stone. Chop chop.”…

Kingdom of Parkinson’s. 5. AllByMyself.

In the meantime, I've got the distinct the feeling that I am here alone, AllByMyself. Haplessly tapping away on my phone. Hey, that’s nice. Someone is texting me. Someone: "How are you?" AllByMyself: Oh well, I’m fine... I guess. Someone: "How did you first notice….?" AllByMyself: I'm not sure, really. Didn’t even think anything was wrong, at least, nothing serious.A I am about to give a full-blown account of the how, why and when…but Someone is cutting me short. Someone: "Aaah I know someone with Parkinson’s, of course he’s dead nos, although he didn’t die from Parkinson’s mind. At least, not directly. The complications were what did it in the en, you know, the lungs and so on, not being able to get out of bed, unable to swallow, difficulty eating…boy did he suffer. But hey, for all you know things might progress more slowly in your case, wouldn’t that…

Kingdom of Parkinson’s. 4. Family.

This is terrible. I am ready to bravely continue my journey, believe you me, but what about my family? They can’t get hold of me in my current rather desperate situation, lost within the walls of this place. We’re texting, facetiming, and what have you. I reassure them with brave words: "It's not going to kill me." Yeah right, that really helps. Or: "It will be years and years before I am unable to walk” Huh?? My family is in shock. What do you mean ‘unable to walk’? I’m scared too. Not so much about that walking business, but rather about…dementia, depression, apathy…not to mention swallowing and drooling. Talking. Singing…. This is really bad. All those symptoms ... the next thing I’ll know is that I have each and every one of them within a week. A month tops. Statistics My husband is texting. He sends a photo of a…

  • 1
  • 2
Close Menu