Ah I know some with Parkinson's too...

Listing the Impossible

Parkinson’s is a disease of losses, wouldn’t I know it. But hey, deep down we all know there’s one thing that not even Parkinson’s can take away from you.

 

 

Don’t. Give. Way.

I don't 'fight' against Parkinson's. Don't like the word 'fighting'. Don't like fighting full stop. This image of me at our Rock Steady Boxing Het Gooi gym, that's what I do.  (Probably my shortest blog ever.)

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Planet Researcher to Planet Patient (by Simon Stott)

Wim Rozenberg Fotografie

Simon’s answer to Planet Patient vs Planet Researcher

“She’s really ‘leuk’ (Dutch for nice).”

Diagnosed at 46 with Parkinson’s, Mariëtte keeps a great blog that touches on many areas of life, including boxing. But it also provides her with a medium to discuss how she lives with Parkinson’s (you should follow her if you don’t already).

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Don’t. Patientise. Me.

So, we’re finally ready to start boxing, and then they go and patientise it. I am fully capable of discussing boxing with my neurologist myself and sorting out a medical release. I may be losing my health, but I am not losing my mind.

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Listing the Impossible

Parkinson’s is a disease of loss. At first, you only lose the small things. Then you lose a few more until it eventually becomes quite a lot. You can see this coming, even if you don’t exactly know what you’re going to lose and when.

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It Takes Two

 

When something major happens, you tend to want to share it with someone. You’re feeling shocked or happy or sad, and that can be too much for one heart.

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You (don’t) know what you’re missing

My right hand used to be so strong! I could do anything I wanted with it and consider that perfectly normal. These days, whenever I see my right hand, I know: you used to be so strong. You’re doing your best, but you’re definitely not what you used to be. And my heart breaks a little. (more…)

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