A Parkinson’s charity (dedicated to finding a cure for Parkinson’s) wanted to know what a cure for Parkinson’s would mean to us people with Parkinson’s. I’m sure that they asked this question out of genuine interest. And I’m sure that the question was well-intended. In fact, I’m positive about that. But after 8 years of living with Parkinson’s, I’m afraid that I’d have to reply: That’s an incredibly stupid question. As in: really, really stupid. As a Parkinson’s-free person, you should know full well what it means to be Parkinson’s-FREE. Do I really need to spell out just how lucky you are to be Parkinson’s-free? Don’t you appreciate being Parkinson’s-free? Must you instead ask me (a pwp for 8 years) what a Parkinson’s-free life would mean to me? Take a look in the mirrorNow, what do you see?Sheer joy, happiness, gratefulness, a huge smile on your face, simply because you’re…
Parkinson’s is a disease of losses, wouldn’t I know it. But hey, deep down we all know there’s one thing that not even Parkinson’s can take away from you.
I don't 'fight' against Parkinson's. Don't like the word 'fighting'. Don't like fighting full stop. This image of me at our Rock Steady Boxing Het Gooi gym, that's what I do. (Probably my shortest blog ever.)
Simon’s answer to Planet Patient vs Planet Researcher
“She’s really ‘leuk’ (Dutch for nice).”
Diagnosed at 46 with Parkinson’s, Mariëtte keeps a great blog that touches on many areas of life, including boxing. But it also provides her with a medium to discuss how she lives with Parkinson’s (you should follow her if you don’t already).
Listing the impossible. About the things even Parkinson's can't take away. Just replace Parkinson's with corona.