So, what fun things have you been up to lately’
The finest question a health care professional can ask. It also happens to be the finest question I can ask myself.
The great thing about getting a nasty disease is that you start to appreciate the little things in life soooo much more than you used to. Isn’t it just wonderful to watch the sun rise, set, or whatever your sun does? To hear a bird sing, even if this particular little thing does keep you awake at 5 in the morning. (more…)
I’ve come across a lot of urban parkinson’s myths. So many in fact that I made up a name for them – parky pies. The first parky pie I had the pleasure of sinking my teeth into, was “that people with depression get parkinson’s more often than those who are not depressed”. And there was me thinking that once was enough. This particular parky pie is actually correct, although it is quite easy to misinterpret. Another commonly consumed parky pie is that “only old men in grey cardigans get parkinson’s”. And they only get tremors, nothing else”. (more…)
This blog was selected as guest blog by the Michael J. Fox Foundation for Parkinson’s Research and by BBC World Service Radio.
And she was right. She casually hit the nail on the head as we chatted by the meat counter in the supermarket. That’s the thing with: illness, tragedy, loss…it’s so not YOU. Neither is a Parkinson’s diagnosis at 46. It’s just not how you envisaged your future. Fair enough, it’s not really anyone, my friend continued, but you…? No way, you’re so funny, you always make me laugh!
So, love. It’s not changing gear quite like it once used to? Still a nippy little set of wheels - am a tiny bit worried about the transmission fluid though. Tell me, when did you first notice that there was something wrong with your car? Mechanic wants to hear it from you The mechanic looks like he already knows what you're about to say, but he prefers to hear it from you. So you dig deep, deep into your memory. Yes, I remember when, in France, on the motorway. I wanted to overtake, but the gearbox didn’t react quickly enough - I mean, I put my foot down on the clutch, indicated, glanced in the mirror, but nothing happened, at least not quickly enough. Fortunately I was okay, but that gearbox has never been the same since. Come to mention it, the steering is also a bit strange. Everything feels…
You bump into a friend, they ask how you’re doing, and snap – you burst into tears. You don’t want to cry. Not again. (more…)
I thought that I was scared, but it seems that others are every bit as scared as me. Scared of me, my Parkinson’s, my fear, my tears. How you notice exactly, I can’t quite put my finger on, but you do notice. An imperceptible, almost reverent expectation. And then comes the inevitable question, the question that I too would still dearly love to answer: how did you first spot it? There’s always another hidden question within, a sort of self-check. (more…)
The lady with the new glasses says: Parkinson’s? I know a few people with Parkinson’s.