Vrouw.nl, De Telegraaf, interview, April 2017 50,000 people in the Netherlands have Parkinson’s – a progressive disease that causes certain nerve cells to die, resulting in loss of muscle control. The repercussions: tremor, stiffness and slowness.
Remember that sea, those swirling waves and the bambino on the beach with his bucket and spade? And that sandcastle?
Well, today, I misplaced my own trusty spade. Had absolutely no idea where I’d put it. Not that I had sandcastles on my mind. Far from it. But I did want my spade back. On a day like today, not everything works and what does, works only by half. (more…)
You, or someone you know, has got Parkinson’s. Perhaps you’ve only just found out or maybe you’ve known for years. If you’ve only just found out, you’ll probably be feeling pretty overwhelmed to say the least. All you can think, is: What Now!?
Now, now! Tut, tut. Get a grip. I suspect you might be suffering from a touch of parkinsonneritis. Yes, you do. Not that it matters, but I hope you realise we all feel a little under the weather from time to time. I’m a complete wreck at times, yet I still manage to soldier on. Why don’t you take a nice, brisk walk? Will do you the world of good, all that fresh air. That’s what they tell people with depression and it helps them no end. Now, come on – a little rain never hurt anyone. Come on. Up and at ‘em!
Soooo, Mrs Robijn, tell me, what seems to be the problem? Went there on my own, obviously, I’m perfectly healthy, aren’t I. So I reply: Well, doctor, er yeah, I have a feeling that my right hand’s not quite okay, neither is my right foot and I er, I dunno, it’s like the messages are not getting through quickly enough or something. Silence. Hm. Too slow you say? Can you still smell properly?
You promised me a lot, Life. Happiness, success, a touch of fame, even if I didn’t know exactly what form that would take, a family with the love of my life, living to 100. Sooooo, can we take just a little moment to discuss, Life? That’s if you can tear yourself away from lining up yet more surprises? (more…)
I once said to someone who gave me unsolicited advice on how to deal with Parkinson’s: look, I might be losing my health, but I’m certainly not losing my mind. So if I need advice, I’ll ask for it, okay? And you might or might not be on my preferred shortlist of advisors. That was a bit harsh.
For some reason, the thought of losing my freedom of movement fills me with particular dread. Why, I can’t quite put my finger on. When I try to imagine it, I picture myself in a room clad with dated wallpaper, sitting in a grimy chair with a not-so-fresh glass of water. With a straw. And, I’m waiting you see, just waiting.
ID card? Where’s my hospital ID card? And socks, am I wearing clean socks? What if I have to undergo an examination for one thing or another, on that paper-covered couch in my whiffy socks. And he’ll naturally assume (I have a he) that I’m not looking after myself properly anymore. You bet he’ll ask: are you having difficulties getting dressed?
They don’t drink enough. It’s strange, but I often see that with Parkinson’s patients. Haven’t done any research into it, but I really think you should drink more. Or don’t you have any problems with constipation? No?! (more…)
I was 4 years old and made a Decision. The photo captures the moment perfectly. I might have been young, but I decided that the photographer was stupid, along with his studio, the backdrop and everything else. And with that decision came a vision: in my life, I was going to do things very differently.