How I missed Parkinson’s early warning signs

signsJust who, exactly, did get them right and in good time, those early warning signs of the latest earthquake? The scientists? Nope. The locals? No, unfortunately not them either. Did anyone even pick up on the Japanese tsunami in the first place, never mind in time? Right. So, in comparison, missing the early warning signs of Parkinson’s is an easy mistake to make. The early warning signs of Parkinson’s are but a tiny tremor to the system, when compared to the tectonic tremors of an earthquake. We tend to miss both. (more…)

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Power of the patient

Undercover patient A few months ago I was an ' undercover' patient at the ParkinsonNet Jubileum Congress (2014). Man, that was stressful. Imagine taking a tour in your future of less less less smaller smaller smaller. I made a point of finding the Gimme Hope handouts. They were there, but not exactly in a goody bag. I bumped into quite a few people I knew, who were mostly surprised to see a real patient at a therapists and researchers event. And they exclaimed: oh, you still look great. I’d probably say the same thing; it's also nice to hear, but just suppose it was the stunningly beautiful Angelina Jolie? You wouldn’t walk up to her and gush: wow, you still look amazing! Would you? I wouldn't. I must admit, I often greet people (people with one serious problem or the other): You look fantastic! Don’t ask me why I do…

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