Which disease shouts the loudest?

Parkinson’s. Without a shadow of a doubt. Indeed, we 50,000 Dutch parkinson’s patients are responsible for literally dozens of blogs. If you Google the search term ‘Parkinson’s blogs’ you come up with a whopping 249,000 hits in the Netherlands alone – that’s roughly 5 per patient. The 450,000 Dutch cancer patients on the other hand, […]

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Comedy is Tragedy plus Time

Although you might not normally put it quite like that. Not unless you’ve been absorbed in your own personal tragedy for a very long time. Tragedy + Time. That’s exactly how Michael J. Fox put it in an interview, and he certainly knows what he’s talking about. He makes light of it; he’s not going […]

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From the comfort of your own chaos

Who to call in the middle of the night, when you’re in despair? Who’s online even, at 03:00am? Now you know why I publish in your time zone, dear readers in the US, Canada and Australia. Joking. I’m afraid there’s hardly anyone you can call. And you don’t want to be waking your partner for […]

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Hairdresser

I’d been needing to go for two weeks. I’d tried salvaging it with a little mousse, gel and wax, but without much success. At the kitchen table the kids suggested: short isn’t necessarily the answer, mama. True, but neither is long. So, off I went to the hairdresser. She’s young, meticulous and doesn’t sport a […]

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Coverstory of Parkinson Magazine, October 13, 2015

This is the EN translation of the coverstory of Parkinson Magazine, October 13, 2015 Thank you, Dutch Parkinson Society – for allowing me to share my story. Thank you, Astrid Smits, editor of the Parkinson Magazine, for the interview, patience and for so carefully putting my story into words. My friend Lesley Gunn translated the […]

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The worst parkinson’s prejudices are mine.

The great thing about getting a nasty disease is that you start to appreciate the little things in life soooo much more than you used to. Isn’t it just wonderful to watch the sun rise, set, or whatever your sun does? To hear a bird sing, even if this particular little thing does keep you […]

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It’s so not you!

Previously published as guest blog by the Michael J. Fox Foundation for Parkinson’s Research. And she was right. She casually hit the nail on the head as we chatted by the meat counter in the supermarket. That’s the thing with: illness, tragedy, loss…it’s so not YOU. Neither is a Parkinson’s diagnosis at 46. It’s just […]

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