Doctorspeak vs Plumberspeak

Ever been to a medical specialist? Ever had a plumber in your house? After reading this blog you will be able to distinguish between doctor-speak and plumber-speak. Let’s start with the plumber.

Read More

Hairdresser

I’d been needing to go for two weeks. I’d tried salvaging it with a little mousse, gel and wax, but without much success. At the kitchen table the kids suggested: short isn’t necessarily the answer, mama. True, but neither is long. So, off I went to the hairdresser. She’s young, meticulous and doesn’t sport a […]

Read More

The best doctor doesn’t know how I feel

Thank goodness! My neurologist doesn’t know what my sluggish hand feels like. He has no idea how it feels to crawl out of bed, stiff as a board. Neither does my occupational therapist. Yet, despite not knowing what it feels like to have parkinson’s, my neurologist does know how to help me. That’s why he’s […]

Read More

Interview Health Care Magazine

Thank you, Zorgvisie Magazine, for the interview (Dutch Health Care Management Magazine) Mariette Robijn: ‘healthcare providers, be careful what you say’ Three years ago, Mariette Robijn (now 49) received her Parkinson’s diagnosis. In hindsight, and like so many other Parkinson patients, she realised that she’d probably been suffering from the disease for a number of […]

Read More

Gimme Hope

I was the undercover patient at the ParkinsonNet Jubileum Conference in the Netherlands, browsing the respective exhibition stands from the various providers of tools, applications, therapies, medicines and medical know-how. I spoke to health care professionals, listened attentively to Bas Bloem and other scientists, watched videos of patient testimonials, and read about the latest promising […]

Read More