The New Cool when you’ve got Parkinson’s

I was 4 years old and made a Decision. The photo captures the moment perfectly. I might have been young, but I decided that the photographer was stupid, along with his studio, the backdrop and everything else. And with that decision came a vision: in my life, I was going to do things very differently. […]

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Which disease shouts the loudest?

Parkinson’s. Without a shadow of a doubt. Indeed, we 50,000 Dutch parkinson’s patients are responsible for literally dozens of blogs. If you Google the search term ‘Parkinson’s blogs’ you come up with a whopping 249,000 hits in the Netherlands alone – that’s roughly 5 per patient. The 450,000 Dutch cancer patients on the other hand, […]

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Power of the patient

Undercover patient A few months ago I was an ‘ undercover’ patient at the ParkinsonNet Jubileum Congress (2014). Man, that was stressful. Imagine taking a tour in your future of less less less smaller smaller smaller. I made a point of finding the Gimme Hope handouts. They were there, but not exactly in a goody […]

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That’s what I call comfort.

Summer 2013. Off to France for a family holiday. The boss of the holiday village is a straightforward Dutch guy. Pensionado, builder, fond of rough language. Boss says: why are you stressing about so much, relax, woman, you’re biking, swimming, walking – why for x sake? So I tell him why I need to get […]

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