Ah I know some with Parkinson's too...

StripeyDressy never had a baby in a tree.

Did I tell you about this lady who had a baby in a tree? Goodness me! I’ve got such terrible pack pain. Oh yeah, I suffer from that too. But in my case it’s a suspected double hernia. Nothing they can do for it. At least you can still walk, I see. I feel awful. Such a bad head! Must be that hay fever again. Oh yeah, I know someone with that. They can’t step foot out of the house these days, not unless they’re wearing a sort of space suit. Now that is bad. Have you any idea just how much homework and exams I’ve got this week? Oh yeah? Well I heard that there were no school holidays in the UK at all any more. You have to study all year round. Without any grant by the way. And you think you’ve got it bad! Do you realise…

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Comedy is Tragedy plus Time

Although you might not normally put it quite like that. Not unless you’ve been absorbed in your own personal tragedy for a very long time. Tragedy + Time. That’s exactly how Michael J. Fox put it in an interview, and he certainly knows what he’s talking about. He makes light of it; he’s not going to dwell on his tragedy. Not anymore. (more…)

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From the comfort of your own chaos

Chaos dealing with parkinson'sWho to call in the middle of the night, when you’re in despair? Who’s online even, at 03:00am? Now you know why I publish in your time zone, dear readers in the US, Canada and Australia. Joking.

I’m afraid there’s hardly anyone you can call. And you don’t want to be waking your partner for the 1000th time either. So there you are. Just deal with it, you keep telling yourself. Go to sleep, breathe, read or whatever. But just deal with it. (more…)

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Coverstory of Parkinson Magazine, October 13, 2015

This is the EN translation of the coverstory of Parkinson Magazine, October 13, 2015

Thank you, Dutch Parkinson Society – for allowing me to share my story.
Thank you, Astrid Smits, editor of the Parkinson Magazine, for the interview, patience and for so carefully putting my story into words.
My friend Lesley Gunn translated the original NL version into EN.

For those who cannot write.
For those who can’t find the courage to write.
For those who, just like me, can be at a loss what to do with this Parkinson’s business.
For those who have a story to share, but are unable to do so.
It’s for you that I am sharing my story in Parkinson’s Magazine. Written (NL) by a careful editor, Astrid Smits.
This story is about me, about you perhaps, reader.
Thank you Dutch Parkinson’s Society, for allowing me to share my story. (more…)

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Can I have that disease in English, please?

When I was working in the City of London, I found it perfectly acceptable to shout to my colleague across the dealing room: I’m not your dotdotdot secretary! Answer your own dotdotphone. I do admit though, that kind of language was par for the course there. So, it didn’t really feel that bad. At all. Liquid lunches were also the norm. When I was about to quit my job at a Japanese investment bank, my girlfriends and I naturally headed to the pub for a gin and tonic and a bag of salt & vinegar crisps to line our stomachs. At midday. I was already plastered after the first swig - yeah, you tend to make strange choices when you’re deliberating in English about how to tell your Japanese boss - in Japanese - you want to resign. But quit that job I did. And it was a good decision.…

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Get up and go

cropped-DSC_0303.jpgHe: What’s changed since last week and now? Nothing’s stopping you from going to that business meeting with the Chairman of the Board of Directors at this regional health care organization. He’s your client, isn’t he?
Me: Yes, but I’m probably going to burst into tears, he’ll see what’s wrong and then I won’t be able to continue oooh what I am going to do it’s the end nooooo they say that you can get dementia and everything, and what if I can’t drive a car anymore?
And your husband repeats: What’s changed since last week, when we’d never even heard about this parkinsons business and now, now that we know that you have it? 

Come on. Get up and go. (more…)

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voldemort and parkinson’s. face your demons.

Waiting for the tube in London, years back. Opposite on the wall was this great billboard, promoting lipstick. Which in itself is an alien concept to me, if it wasn’t for the powerful copy. It said something along the lines of: Face the Boss. Face your ex. Face the undertaker (ok, made that one up). Face yourself. (more…)

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