Sorry. You’re the 50.000th visitor.

Soooo, Mrs Robijn, tell me, what seems to be the problem? Went there on my own, obviously, I’m perfectly healthy, aren’t I. So I reply: Well, doctor, er yeah, I have a feeling that my right hand’s not quite okay, neither is my right foot and I er, I dunno, it’s like the messages are […]

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No 2 Parkinson’s patients are alike but they all drink too little

They don’t drink enough. It’s strange, but I often see that with Parkinson’s patients. Haven’t done any research into it, but I really think you should drink more. Or don’t you have any problems with constipation? No?!

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The New Cool when you’ve got Parkinson’s

I was 4 years old and made a Decision. The photo captures the moment perfectly. I might have been young, but I decided that the photographer was stupid, along with his studio, the backdrop and everything else. And with that decision came a vision: in my life, I was going to do things very differently. […]

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How I missed Parkinson’s early warning signs

Just who, exactly, did get them right and in good time, those early warning signs of the latest earthquake? The scientists? Nope. The locals? No, unfortunately not them either. Did anyone even pick up on the Japanese tsunami in the first place, never mind in time? Right. So, in comparison, missing the early warning signs […]

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Which disease shouts the loudest?

Parkinson’s. Without a shadow of a doubt. Indeed, we 50,000 Dutch parkinson’s patients are responsible for literally dozens of blogs. If you Google the search term ‘Parkinson’s blogs’ you come up with a whopping 249,000 hits in the Netherlands alone – that’s roughly 5 per patient. The 450,000 Dutch cancer patients on the other hand, […]

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Comedy is Tragedy plus Time

Although you might not normally put it quite like that. Not unless you’ve been absorbed in your own personal tragedy for a very long time. Tragedy + Time. That’s exactly how Michael J. Fox put it in an interview, and he certainly knows what he’s talking about. He makes light of it; he’s not going […]

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From the comfort of your own chaos

Who to call in the middle of the night, when you’re in despair? Who’s online even, at 03:00am? Now you know why I publish in your time zone, dear readers in the US, Canada and Australia. Joking. I’m afraid there’s hardly anyone you can call. And you don’t want to be waking your partner for […]

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Hairdresser

I’d been needing to go for two weeks. I’d tried salvaging it with a little mousse, gel and wax, but without much success. At the kitchen table the kids suggested: short isn’t necessarily the answer, mama. True, but neither is long. So, off I went to the hairdresser. She’s young, meticulous and doesn’t sport a […]

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Coverstory of Parkinson Magazine, October 13, 2015

This is the EN translation of the coverstory of Parkinson Magazine, October 13, 2015 Thank you, Dutch Parkinson Society – for allowing me to share my story. Thank you, Astrid Smits, editor of the Parkinson Magazine, for the interview, patience and for so carefully putting my story into words. My friend Lesley Gunn translated the […]

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