Comedy is Tragedy plus Time

Although you might not normally put it quite like that. Not unless you’ve been absorbed in your own personal tragedy for a very long time. Tragedy + Time. That’s exactly how Michael J. Fox put it in an interview, and he certainly knows what he’s talking about. He makes light of it; he’s not going […]

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From the comfort of your own chaos

Who to call in the middle of the night, when you’re in despair? Who’s online even, at 03:00am? Now you know why I publish in your time zone, dear readers in the US, Canada and Australia. Joking. I’m afraid there’s hardly anyone you can call. And you don’t want to be waking your partner for […]

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Hairdresser

I’d been needing to go for two weeks. I’d tried salvaging it with a little mousse, gel and wax, but without much success. At the kitchen table the kids suggested: short isn’t necessarily the answer, mama. True, but neither is long. So, off I went to the hairdresser. She’s young, meticulous and doesn’t sport a […]

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Weird walk. Peculiar even. Bit like Putin.

Every neurologist is different. Mine too. That ‘mine’ is important by the way. Because I tend to use the possessive when everything’s going well. Strangely enough, whenever he needs to tell me an uncomfortable truth, I automatically switch to ‘the’ and start saying things like ‘the neurologist has observed this, that and the other.’ That […]

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The best doctor doesn’t know how I feel

Thank goodness! My neurologist doesn’t know what my sluggish hand feels like. He has no idea how it feels to crawl out of bed, stiff as a board. Neither does my occupational therapist. Yet, despite not knowing what it feels like to have parkinson’s, my neurologist does know how to help me. That’s why he’s […]

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Interview Health Care Magazine

Thank you, Zorgvisie Magazine, for the interview (Dutch Health Care Management Magazine) Mariette Robijn: ‘healthcare providers, be careful what you say’ Three years ago, Mariette Robijn (now 49) received her Parkinson’s diagnosis. In hindsight, and like so many other Parkinson patients, she realised that she’d probably been suffering from the disease for a number of […]

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Coverstory of Parkinson Magazine, October 13, 2015

This is the EN translation of the coverstory of Parkinson Magazine, October 13, 2015 Thank you, Dutch Parkinson Society – for allowing me to share my story. Thank you, Astrid Smits, editor of the Parkinson Magazine, for the interview, patience and for so carefully putting my story into words. My friend Lesley Gunn translated the […]

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What to say to a person without Parkinson’s. 9 Tips.

Some of my best friends don’t have parkinson’s, but I still respect them. It can be hard though, to know exactly what to say at the right time without putting your foot in it. I mean, if you don’t have parkinson’s, what DO you have? Can’t be anything special, now, can it. But that’s where […]

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The worst parkinson’s prejudices are mine.

The great thing about getting a nasty disease is that you start to appreciate the little things in life soooo much more than you used to. Isn’t it just wonderful to watch the sun rise, set, or whatever your sun does? To hear a bird sing, even if this particular little thing does keep you […]

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Parky Pies

I’ve come across a lot of urban parkinson’s myths. So many in fact that I made up a name for them – parky pies. The first parky pie I had the pleasure of sinking my teeth into, was “that people with depression get parkinson’s more often than those who are not depressed”. And there was […]

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