It’s so not you!

Previously published as guest blog by the Michael J. Fox Foundation for Parkinson’s Research. And she was right. She casually hit the nail on the head as we chatted by the meat counter in the supermarket. That’s the thing with: illness, tragedy, loss…it’s so not YOU. Neither is a Parkinson’s diagnosis at 46. It’s just […]

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Minions in waiting room

That’s what it should say. No entry for those with a nasty, incurable disease. On Twitter, news sites, newspapers and, most importantly, magazines in the waiting room. Even the most widely read women’s magazines can be an absolute minefield. When you least expect it, they might run a special on your specific illness, and just […]

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Here to Wherewolf

Parkinson’s manifests in a sort of delayed delivery of messages, from the brain to the hands for example. I go to pick up the toothpaste, but it takes just that little bit longer than normal. You walk down the stairs and your leg is a faltering cogwheel. Your foot lands differently than expected. Not quite […]

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Can I have that disease in English, please?

When I was working in the City of London, I found it perfectly acceptable to shout to my colleague across the dealing room: I’m not your dotdotdot secretary! Answer your own dotdotphone. I do admit though, that kind of language was par for the course there. So, it didn’t really feel that bad. At all. […]

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Parkinson’s in plain car speak

So, love. It’s not changing gear quite like it once used to? Still a nippy little set of wheels – am a tiny bit worried about the transmission fluid though. Tell me, when did you first notice that there was something wrong with your car?   Mechanic wants to hear it from you The mechanic […]

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Power of the patient

Undercover patient A few months ago I was an ‘ undercover’ patient at the ParkinsonNet Jubileum Congress (2014). Man, that was stressful. Imagine taking a tour in your future of less less less smaller smaller smaller. I made a point of finding the Gimme Hope handouts. They were there, but not exactly in a goody […]

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Get up and go

He: What’s changed since last week and now? Nothing’s stopping you from going to that business meeting with the Chairman of the Board of Directors at this regional health care organization. He’s your client, isn’t he? Me: Yes, but I’m probably going to burst into tears, he’ll see what’s wrong and then I won’t be […]

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voldemort and parkinson’s. face your demons.

Waiting for the tube in London, years back. Opposite on the wall was this great billboard, promoting lipstick. Which in itself is an alien concept to me, if it wasn’t for the powerful copy. It said something along the lines of: Face the Boss. Face your ex. Face the undertaker (ok, made that one up). […]

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Sobsnivelsniff

You bump into a friend, they ask how you’re doing, and snap – you burst into tears. You don’t want to cry. Not again. Because it invariably prompts the question: you’re still having a hard time coming to terms with it, aren’t you – isn’t there someone you can talk to, a psychologist or something? […]

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