Ah I know some with Parkinson's too...

Why it’s a good thing that a doctor doesn’t talk like a plumber. 

Right, love, let’s get this brain into the MRI….NOOO! Can’t believe you still know your own name. My goodness, whoever did your veins did not have the first idea what he was doing… Quack! Wow, I’ve seen a lot in my time…but honestly. You came by in the nick of time. Better get this sorted. It might take a few months to get you back on track, but hey, you want to function somewhat reasonably, right, love?

It Takes Two

 

When something major happens, you tend to want to share it with someone. You’re feeling shocked or happy or sad, and that can be too much for one heart.

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You (don’t) know what you’re missing

My right hand used to be so strong! I could do anything I wanted with it and consider that perfectly normal. These days, whenever I see my right hand, I know: you used to be so strong. You’re doing your best, but you’re definitely not what you used to be. And my heart breaks a little. (more…)

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You only live twice

#wjrpics Fotografie Wim Rozenberg

There’s still so much that I want to do. Please don’t tell me that I won’t be able to. That my dreams will go up in virtual smoke.

Please don’t tell me that, Life.

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Tell me about your Life

    Tell me about when you were little; the hands with which you played in the sand, the food you shunned, the small heartaches and the huge plans. Tell me about a time when you were so sure that you’d grow up big and strong, and what you would and wouldn’t do. Tell me about the grownups, the role models in your fledgling world. Tell me about your home and your place at the kitchen table. Tell me about your first despair, your first triumph. Your very first hero. Tell me what makes you happy and sad or, better still, what makes you giggle uncontrollably. And when was the last time. Tell me what you're good and not so good at. Tell me which faces are forever in your mind, which eyes you love to see. Tell me about your favorite book, the music that makes your heart leap.…

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The Hello Parkinson’s Hamper

 

When you had a baby, you could order a ‘hello-baby-hamper’. Don’t get me wrong – 20 years ago this was perfectly normal (I recently discovered that they still exist, by the way).

And that ‘hamper’. It was always a cardboard box crammed with all kinds of useful, cute, practical, sweet baby things. For the joyful mothers of joyful babies. Whether you screamed all day long in tandem with your screaming baby; it mattered not a jot. You were labelled ‘joyful’. (more…)

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10 things you shoud never google when you have parkinson’s

10 things you should never google if you’ve got Parkinson’s …never in a million years. How high is your risk of invalidity What happens to those dopa-producing cells that are dying off Is it hereditary Eyesight Impulsive behaviour Dementia and how you (don't) recognise it How many people with Parkinson’s can still work 10 years after diagnosis Cognitive problems What else can you get? Depression Believe me - google 1 to 9 just a little too often, and number 10 is a given.

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Up close

From a distance, we all look more or less the same. Chinese people live in China, green trees grow in green woods, and grass is just grass. A desert comprises simply sand, and that’s pretty much just how it is. People with Parkinson’s have Parkinson’s, and there are millions of them. (more…)

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Parkinson’s First Aid Part II. Resistance.

Remember that sea, those swirling waves and the bambino on the beach with his bucket and spade? And that sandcastle?

Well, today, I misplaced my own trusty spade. Had absolutely no idea where I’d put it. Not that I had sandcastles on my mind. Far from it. But I did want my spade back. On a day like today, not everything works and what does, works only by half. (more…)

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Parkinson’s First Aid

Blog Mariette RobijnYou, or someone you know, has got Parkinson’s. Perhaps you’ve only just found out or maybe you’ve known for years. If you’ve only just found out, you’ll probably be feeling pretty overwhelmed to say the least. All you can think, is: What Now!?

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