Listing the Impossible

Parkinson’s is a disease of loss. At first, you only lose the small things. Then you lose a few more until it eventually becomes quite a lot. You can see this coming, even if you don’t exactly know what you’re going to lose and when. The things that you lose – writing with a pen, […]

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Did I tell you the one about the basketball player, the neurologist and the blogger?

If you’re the greatest basketball player in the world, then you consistently score in 450 out of every 500 shots. In other words, you’ve got a 90% success rate. Not bad, huh? But when that same basketball player appears on the news, it’s all about those 450 baskets and not the 50 failed attempts. Meanwhile, […]

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Finishing what I didn’t begin.

The title says it all. You could skip the entire blog, because you already get it. It feels great to finish something that you began. Something that you chose for yourself, something that’s truly yours. I finished my education, chose my husband (and husband chose me), bought a house, had some children (not that there’s […]

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So, what fun things have you been up to lately?

I didn’t see that coming. Imagine visiting your neurologist and, when you get there, they can’t wait to hear what fun things you’ve been up to since your last appointment. “So, Mrs. Robijn, tell me, what fun things have you been up to? What?!! Only two? In those four months since our last appointment? Hm, not […]

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Friomf

All sorts of bright sparks follow the Wim Hof Method Training. I thought: either clever people attend the training or the training makes you clever. So, I also enrolled. I plumped for the ‘sitting in a tank of ice’ option. A plucky friend was going to join me. She could still squeeze one more challenge […]

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You ARE your disease after all. Bummer.

We have a lot on our plates with Parkinson’s – accepting, letting go, embracing, exercising, resting, eating healthy, sleeping well, and goodness knows what else. Meanwhile, Parkinson’s continues to threaten your brain on all fronts, while your leg shuffles and your hand trembles. You’re acutely aware that you won’t be sprinting through life like a […]

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It Takes Two

When something major happens, you tend to want to share it with someone. You’re feeling shocked or happy or sad, and that can be too much for one heart. Nine years ago, my grandmother died. We told the children. Our son of almost 7 was so startled that he started to tremble. A little later, […]

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You (don’t) know what you’re missing

My right hand used to be so strong! I could do anything I wanted with it and consider that perfectly normal. These days, whenever I see my right hand, I know: you used to be so strong. You’re doing your best, but you’re definitely not what you used to be. And my heart breaks a […]

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Tell me about your Life

Tell me about when you were little; the hands with which you played in the sand, the food you shunned, the small heartaches and the huge plans. Tell me about a time when you were so sure that you’d grow up big and strong, and what you would and wouldn’t do. Tell me about the […]

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