Ah I know some with Parkinson's....

Why it’s a good thing that a doctor doesn’t talk like a plumber. 

Right, love, let’s get this brain into the MRI….NOOO! Can’t believe you still know your own name. My goodness, whoever did your veins did not have the first idea what he was doing… Quack! Wow, I’ve seen a lot in my time…but honestly. You came by in the nick of time. Better get this sorted. It might take a few months to get you back on track, but hey, you want to function somewhat reasonably, right, love?

⭐︎ ExerciseDispenser. Easy, cheap, effective Parkinson’s exercise tool.

Parkinson's therapy consists of medication and exercise. Most of the people with Parkinson's use a drug dispenser to make sure they take their meds on time. I do. How about exercise? I've seen and tested schedules, planners, reminders, both online and on paper. Even tried writing on a window, a bit like they do in detective series on tv. I do have the willpower, the discipline, I do understand the value of exercise in Parkinson's, I have no trouble remembering anything, we've got a little indoor gym, all of it. Still, nothing really visualised the daily need to get moving, walking,…

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Parkinson’s? Oh, you know, business as usual

parkinson's is business as usualLet me get to the point straight away: if you don’t regard your Parkinson’s as NORMAL, then you’ll never make it. Most people will consider it normal sooner or later. If you work in healthcare and Parkinson’s is your day job for example, then Parkinson’s is perfectly normal. You’ll eventually get to retire from Parkinson’s and go and do something else, just like normal people do. If your father or grandmother happened to spend their final years suffering from Parkinson’s, then you’ll likely consider that kind of normal too.So, if my hand becomes a little stiffer, then that’s also just matter-of-factly-normal too.

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Parkinson’s. Big data, small problem.

big data small problemEveryone wants to remain healthy. If you – heaven forbid – suddenly become unexpectedly sick, then you naturally want regain your health as quickly as possible. Surely your doctor, therapist or goodness knows who can do something? Surely all those pharmacists can rustle up some effective pills? If you visit your GP with a throat like sandpaper, then it’s a trifle disappointing when he says that there’s nothing he can give you – it’ll clear up all by itself. No cough mixture, no antibiotics, no nothing. Hm. (more…)

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Parkinson’s. Escape from Parkatraz.

Okay, fair enough: there is no escape. Or is there? Upon diagnosis a substantial percentage of your dopa producing cells will have already packed in. Irreversibly. By that time dopamine production will have usually reduced to at least 30% or 40% in one of your substantia nigra. Which to me is dark matter in itself. Mind you, I once asked a neurologist what a neurotransmitter looks like. “Well, he said, I’ve never actually seen one.” Right. (more…)

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Dear Parkinson’s, take your hands off my cake. Now.

If you’d told me four years ago that we’d be having a new veranda erected in the garden today, I’d never have believed you. Or that we’d both still be working and I’d have put on 8 kilos despite having exercised more over the past 4 years than I ever did in the previous 46. Nope, I’d never have believed you back then. I mean, when the neurologist tells you that you have Parkinson’s disease – a difficult diagnosis to swallow, Mrs Robijn – you’re pretty much certain that your life is over. And yet, here I am tapping away on my keyboard as usual. Now that’s what I call a wonderful anti-climax. Okay… just for a minute or so.
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