Get up and go

He: What’s changed since last week and now? Nothing’s stopping you from going to that business meeting with the Chairman of the Board of Directors at this regional health care organization. He’s your client, isn’t he? Me: Yes, but I’m probably going to burst into tears, he’ll see what’s wrong and then I won’t be […]

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voldemort and parkinson’s. face your demons.

Waiting for the tube in London, years back. Opposite on the wall was this great billboard, promoting lipstick. Which in itself is an alien concept to me, if it wasn’t for the powerful copy. It said something along the lines of: Face the Boss. Face your ex. Face the undertaker (ok, made that one up). […]

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Sobsnivelsniff

You bump into a friend, they ask how you’re doing, and snap – you burst into tears. You don’t want to cry. Not again. Because it invariably prompts the question: you’re still having a hard time coming to terms with it, aren’t you – isn’t there someone you can talk to, a psychologist or something? […]

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Gimme Hope

I was the undercover patient at the ParkinsonNet Jubileum Conference in the Netherlands, browsing the respective exhibition stands from the various providers of tools, applications, therapies, medicines and medical know-how. I spoke to health care professionals, listened attentively to Bas Bloem and other scientists, watched videos of patient testimonials, and read about the latest promising […]

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Movie

What do other people know, that I don’t? Everybody appears to have seen the movie, all of it, every scene. Even the parts that were later cut. And the bloopers. Ah, and the bonus material about what might happen if…. the audience shivers, brrrr, imagine having that condition! Can you pass the popcorn please, come […]

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Afraid

I thought that I was scared, but it seems that others are every bit as scared as me. Scared of me, my Parkinson’s, my fear, my tears. How you notice exactly, I can’t quite put my finger on, but you do notice. An imperceptible, almost reverent expectation. And then comes the inevitable question, the question […]

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Ah I know someone with glasses like that

A very similar conversation really took place The lady with the new glasses says: Parkinson’s? I know a few people with Parkinson’s. Some can still walk reasonably well, but it’s their speech that’s the worst. They can’t talk clearly any more. I don’t mind though – they’re friends, after all. Some can’t live independently any […]

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