Ah I know some with Parkinson's....

7 million reasons (not) to celebrate

How many of them can you name? Your grandmother, an American celebrity or that Dutch blogger. How many ever got better?

How can we have photos of Mars and print 3D organs, yet we still can’t cure any of those 7 million?

7 million people have Parkinson’s. There’s nothing we can do about it. And all of those millions will suffer that disease some 15 or 20 years on average. That’s 60 to 120 million man-years.

How many combined man-years of research have the scientists devoted to Parkinson’s? 120 million man-year? That’s stretching it a bit.

What, dear people at World Parkinson’s Day, what exactly do we smile at in those photos of the big day? What is so great about those moving stories and new insights? What is so inspiring?

What, dear people at World Parkinson’s Day, what are we supposed to say on that big day? What are we supposed to say to that friend who’s only just learnt that it will be tough, real tough.

What am I supposed to say? To my friend, those 7 million, to myself…

You needn’t cope with it. You needn’t give it a place. You needn’t do anything, actually. Because if all those researchers can’t help you, then how on earth can you be expected to do it alone?

What, dear people at World Parkinson’s Day, what am I supposed to say to comfort my friend, those 6 million others, myself?

Then again…7 million reasons to smile

Why did I write ‘7 million reasons NOT to celebrate’ in my previous blog? Because I was sad. I needed hope, for me and my family, for a friend and his family. And for those 7 million others with parkinson’s.

A demanding kind of hope

Not just hope that one day…but a demanding kind of hope.  Get Me A Cure Now – kind of demanding. It was a demand driven by sadness.

Not fair

Not fair on researchers, carers, doctors, nurses or on any other health care professional who is working his or her socks off to find a cure or provide care – solely to help me, my family, my friend and his family and those 7 million others.

You, dear researchers, carers, doctors, nurses and any other pd health care professional, you DO give us reason to smile. You devise meds, therapies, operations and organisations – just to help us, 7 million pwp. Without you, our lives would be unbearable. Without you, we’d be on our own.

You are the ones who need the unflinching support of us, 7 million pwp. You are the ones who need to get to know us. You may well be the ones who need hope.

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