Ah I know some with Parkinson's too...

So what fun things have you been up to lately?So, what fun things have you been up to lately’  

The finest question a health care professional can ask. It also happens to be the finest question I can ask myself.

Planet Researcher to Planet Patient (by Simon Stott)

Wim Rozenberg Fotografie

Simon’s answer to Planet Patient vs Planet Researcher

“She’s really ‘leuk’ (Dutch for nice).”

Diagnosed at 46 with Parkinson’s, Mariëtte keeps a great blog that touches on many areas of life, including boxing. But it also provides her with a medium to discuss how she lives with Parkinson’s (you should follow her if you don’t already).

(more…)

Continue Reading

Don’t. Patientise. Me.

So, we’re finally ready to start boxing, and then they go and patientise it. I am fully capable of discussing boxing with my neurologist myself and sorting out a medical release. I may be losing my health, but I am not losing my mind.

(more…)

Continue Reading

It Takes Two

 

When something major happens, you tend to want to share it with someone. You’re feeling shocked or happy or sad, and that can be too much for one heart.

(more…)

Continue Reading

You (don’t) know what you’re missing

My right hand used to be so strong! I could do anything I wanted with it and consider that perfectly normal. These days, whenever I see my right hand, I know: you used to be so strong. You’re doing your best, but you’re definitely not what you used to be. And my heart breaks a little. (more…)

Continue Reading

You only live twice

#wjrpics Fotografie Wim Rozenberg

There’s still so much that I want to do. Please don’t tell me that I won’t be able to. That my dreams will go up in virtual smoke.

Please don’t tell me that, Life.

(more…)

Continue Reading

Tell me about your Life

    Tell me about when you were little; the hands with which you played in the sand, the food you shunned, the small heartaches and the huge plans. Tell me about a time when you were so sure that you’d grow up big and strong, and what you would and wouldn’t do. Tell me about the grownups, the role models in your fledgling world. Tell me about your home and your place at the kitchen table. Tell me about your first despair, your first triumph. Your very first hero. Tell me what makes you happy and sad or, better still, what makes you giggle uncontrollably. And when was the last time. Tell me what you're good and not so good at. Tell me which faces are forever in your mind, which eyes you love to see. Tell me about your favorite book, the music that makes your heart leap.…

Continue Reading

Parkinson’s First Aid

Blog Mariette RobijnYou, or someone you know, has got Parkinson’s. Perhaps you’ve only just found out or maybe you’ve known for years. If you’ve only just found out, you’ll probably be feeling pretty overwhelmed to say the least. All you can think, is: What Now!?

(more…)

Continue Reading

Parkinsonneritis

Parkinsonneritis
Now, now! Tut, tut. Get a grip. I suspect you might be suffering from a touch of parkinsonneritis. Yes, you do. Not that it matters, but I hope you realise we all feel a little under the weather from time to time. I’m a complete wreck at times, yet I still manage to soldier on. Why don’t you take a nice, brisk walk? Will do you the world of good, all that fresh air. That’s what they tell people with depression and it helps them no end. Now, come on – a little rain never hurt anyone. Come on. Up and at ‘em!

(more…)

Continue Reading
Close Menu